• Ghana Reference Network for Undiagnosed, Genetic & Rare Diseases

  • Registration Form

  • Privacy and Confidentiality Policy

    This privacy policy sets out how Rare Disease Ghana Initiative uses and protects any information that you provide to the organization. Rare Disease Ghana Initiative is a nonprofit Organization with the mission to improve the wellbeing and quality of life of families affected by rare diseases in Ghana through awareness creation, advocacy, research and patient support. Rare Disease Ghana Initiative is committed to ensuring that your privacy is protected. Should we ask you to provide certain information by which you can be identified; you can be assured that it will only be used in accordance with this privacy and confidentiality agreement.Every information you provide is protected under the Data Protection Act, 2012 of the Republic of Ghana. We will not sell, distribute or lease your personal information to third parties unless we have your permission or are required by law to do so. We may use your personal information to contact you or send you information that we think you may find of interest. Rare Disease Ghana Initiative may change this policy from time to time by updating this privacy policy. Rare Disease Ghana Initiative will contact you regularly to ensure that you are happy with any changes. By filling and sending this form, you consent to be a member of Ghana Reference Network for Undiagnosed, Genetic and Rare Diseases (GRN-UGRD). Your application will be reviewed and you will be contacted as soon as it is approved.

  • Name and Contact Details

  •  -
  • Generic and rare diseases areas of special interest

  • Once you submit your application, we will contact you shortly to confirm your membership application. 

    Thank you!

  • Should be Empty:
Jotform Logo
Now create your own JotForm - It's free! Create your own JotForm