Privacy and Confidentiality Policy
This privacy policy sets out how Rare Disease Ghana Initiative uses and protects any information that you provide to the organization. Rare Disease Ghana Initiative is a nonprofit Organization with the mission to improve the wellbeing and quality of life of families affected by rare diseases in Ghana through awareness creation, advocacy, research and patient support. Rare Disease Ghana Initiative is committed to ensuring that your privacy is protected. Should we ask you to provide certain information by which you can be identified; you can be assured that it will only be used in accordance with this privacy and confidentiality agreement.Every information you provide is protected under the Data Protection Act, 2012 of the Republic of Ghana. We will not sell, distribute or lease your personal information to third parties unless we have your permission or are required by law to do so. We may use your personal information to contact you or send you information that we think you may find of interest. Rare Disease Ghana Initiative may change this policy from time to time by updating this privacy policy (read full privacy policy here https://www.rarediseaseghana.org/privacy-policy/). Rare Disease Ghana Initiative will contact you regularly to ensure that you are happy with any changes. By filling and sending this form, you consent to be a member of Clinical Research Network for Undiagnosed and Rare Diseases (GRN-UGRD). Your application will be reviewed and you will be contacted as soon as it is approved.